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Who Is Livie ?

Olivia Mulhern is an 8 month old baby recently diagnosed with Spinal Muscular Atrophy (SMA) Type 1. Without treatment her condition will deteriorate and it will be unlikely she could survive past her second birthday.

What Is SMA ?

Spinal Muscular Atrophy (SMA) is caused by a gene deletion that causes deterioration of the nerve cells connecting Livies' brain and spinal cord to her muscles. There is no cure and Livie has the most severe type.

Donate now

Livies best hope is a one off gene treatment, currently only available in America and costing a staggering two million dollars. Livie is against the clock as this treatment is only available to children under two years old.
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JUNE 5TH 2020
 

EVEREST FOR LIVIE

To help raise 10k for Livie's fund, 3 Donegal lads are doing a mammoth hike the second weekend in June (5th,6th & 7th)

EVENT DETAILS

A punishing three day hike climbing Carnaween, a mountain in Letterbarrow, Co. Donegal an incredible 20 times non-stop over 48 hrs. The total altitude ascended during this ordeal is the direct equivalent of scaling Mount Everest.

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DANIEL O' DONNELL

Daniel will be releasing his single 'Don't Let the Music Die' available 29th May on Spotify! All proceeds going to Livie.
Click to see Daniel discuss his generous initiative
OTHER UPCOMING EVENTS
date event organiser
09.05.2020 Post A Baby Photo Lauren Duke
16.05.2020 36 Hr Non Stop Relay Athy Triathlon Club
17.05.2020 Sunday Game Challenge Aileen Gillic
18.05.2020 10,500ks "Everest" Challenge Primark/Penneys staff (Kidswear Dept)
19.05.2020 Fundraising Giveaway Stephanie Lange Beauty
22.05.2020 Sponsored toddle/ Raffle Magic Minds Preschool & Early Years
23.05.2020 Stanley Oisin Stove Raffle Martins Plumbing & Heating
29.05.2020 Treats Hamper Prize Draw Potting Shed Tea Room
31.05.2020 50k In A Day Adam Roberts and Ciana Darrall
02.06.2020 Win 100 Wedding Invites Amore Wedding Stationary
06.06.2020 Live For Livie Cathal Mulhern
06.06.2020 Everest For Livie James McGroary, Kevin McBrearty, Aaron Kyles
TBC Raffle for Livie Kelly & Ryan O' Neill
ONGOING 2 Million Steps for Livie Primark/Penneys staff

Have an event you want to add? Email us! contact@abetterlifeforlivie.ie